Human Interest

Born with 80 percent of his brain missing, Jaxon is still amazing doctors as he turns 3

Even before Jaxon Buell’s parents had met, God had a plan in place for his life. It’s evident in a story from when his parents, Brandon and Brittany, first began dating. The couple had much in common, but one hope for the future stands out above the rest. They both felt a calling and a wish to have one child: a son. Amazingly, that’s how life would play out for them. After they married and became pregnant, they learned they were indeed having a boy. And the day after learning this exciting news, they were told that their son was facing a diagnosis that threatened to take his life. But love overcame the obstacles, and on August 27, 2017, Jaxon and his family celebrated his third birthday.

“[Doctors] can’t tell us what the future holds,” explained Brandon Buell. “Being that he is missing 80 percent of his brain, but he is as strong as ever. He’s not showing any signs of going anywhere. We are so proud of him. He’s a strong little guy just like he has been from the beginning.”

During the pregnancy, the shape and size of Jaxon’s head began to cause some concern, and while doctors didn’t have an exact diagnosis for him, they did advise the new parents to abort. Irritated at how quick the doctors were to write off their son, Brittany and Brandon ran all the tests they could and went home to discuss the situation. Brittany was 23 weeks along and the couple was told they had one week to decide whether or not to have an abortion.

 

“Something inside me, almost like it was coming from Jaxon, was telling me ‘Don’t give up on me’,” explained Brandon. “I remember having a heartfelt, emotional conversation because I felt I was being told that from him, even though we didn’t yet know him and we had to go on blind faith. […] We didn’t feel that was in our hands. If he wasn’t going to make it, God would make that decision.”

Doctors told the couple that Jaxon may not survive the pregnancy and if he did he could die at birth. But right from the beginning, he proved to be a fighter. After Jaxon was born, he was diagnosed with Lissencephaly, a rare neurological disorder which means his brain doesn’t have the shapes, folds, and curves that it should. Some people with the condition die early, but some live.

The first three weeks of Jaxon’s life were spent in the neonatal intensive care. Doctors asked the couple to sign a Do Not Resuscitate form (DNR) but they refused. They were adamant that they would always do anything they could to keep Jaxon alive, nurture him, and comfort him. When he was released from the hospital, doctors told his parents to simply keep him comfortable because they didn’t believe he would live long. They said he would likely be blind and deaf, never walk or talk. What they didn’t know were the plans that God had in store.

 

Jaxon’s story spread around the globe and a video of him saying “hello” went viral. He has touched countless lives with his adorable smile and big blue eyes. His life and his story proving that life is always valuable and worth living. His father Brandon began speaking at right to life events and leading pro-life workshops, working with both the Family Research Council and the National Right to Life Committee. He shares the story of choosing life for his son and feels it is important for fathers to speak out.

 

“I’m feeling led to speak for and on behalf of Jaxon in a leadership role as a father,” he explained. “The entire reason that I do it is because I’m so proud of my son and his story and the fact that we chose life. That story always needs to be shared and told. The pro-life community needs more men to stand up. More fathers need to stand up and join these women. You think of the mother and child but there is the entire family. I’m standing beside them and I’m standing with them. This is a cause worth believing in and I think a male effort can make it even louder.”

As Brandon Buell works to help save children who face a prenatal diagnosis from being killed through abortion, Jaxon is working on meeting some milestones. He attends physical and occupational therapy and is working on using his pacifier which will help him get closer to his goal of being able to eat orally. He switched feeding tubes – a G tube to a G-J tube – this year and has been able to gain weight more steadily. He hasn’t had to be hospitalized in quite a while and is working on rolling over, sitting up, and straightening his legs. He is home with his mom, who has gone back to school to work on her degree. His parents are enjoying life with him, and he with them.

 

“[We want] just for him to remain as healthy as possible, for him to stay comfortable. And to smile like he has and to keep showing that love back to us. That’s what we want every single day, nothing but love and happiness,” said Brandon Buell.

The little boy doctors thought should die through abortion is not only proving them all wrong, but he is showing the world that everyone has value and a purpose set in place by God. God put the motions into play years ago for Jaxon to be created, to live, and to change hearts and minds on abortion.

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